Posts Tagged ‘NHS Research’

Research into Musicians’ Dystonia at UCL Institute of Neurology

Monday, January 20th, 2014

The Pathophysiology of Dystonia

Are you a musician with focal dystonia?

A team of researchers at the UCL Institute of Neurology and The National Hospital for Neurology and Neurosurgery, led by Dr Mark Edwards, are particularly interested in hearing from musicians with focal (task-specific) dystonia. The aim is to develop methods for assessing the symptoms, and discover information which will be useful in future clinical trials. It is important to note that the study is not, in itself, a clinical trial for treatment of dystonia.

Musicians participating will need to attend multiple sessions at the Institute of Neurology with their instruments (a keyboard can be provided). You would need to able to attend 12 sessions which last one hour or less. The design requires four sessions in four consecutive days which are repeated three times with a gap of a few weeks in between. Travel expenses will be covered and times and dates are generally very flexible.  The study uses transcranial magnetic stimulation within specific safe parameters. It is not invasive, does not involve pain and is generally very well tolerated by participants.

The team hope to establish a specific clinic for this type of dystonia.

If you have this form of dystonia and would like to be seen in clinic or are interested in taking part in studies please email Dr Mark Edwards, Consultant Neurologist, via:

The team will provide full information to anyone interested in taking part.

Research Ethics Committee approval for this study has been granted by the NHS National Research Ethics Service.

Musicians’ Dystonia Research – Call for Participants

Wednesday, January 4th, 2012

Are you a musician with focal hand dystonia?

An NHS team co-ordinated by Dr Mark Edwards (who is also Neurology Advisor to BAPAM) is conducting research into musicians’ dystonia. A number of exciting projects with the aims of better understanding this condition, and hopefully developing new treatments, are currently running.

The team are recruiting enthusiastic musicians for a retraining programme to help establish the most effective treatment strategy.  The studies will be conducted at the Institute of Neurology in Queen Square, London which is a leading UK establishment in dystonia research. The work is co-ordinated by Senior Lecturer Dr Mark J Edwards and two PhD students, Dr Anna Sadnicka and Dr Panagiotis Kassavetis. At this time the team is specifically recruiting musicians with dystonia affecting the hand.

If you have this form of dystonia and are interested in taking part in studies (or if you are healthy and wish to register as a healthy volunteer) or have further questions please contact: Dr Mark Edwards, Sobell Department, 33 Queen Square, UCL Institute of Neurology, London, WC1N 3BG.

Or email Dr Edwards via:

Note: BAPAM is not involved with organising or overseeing this project.